If you're coping with a rare disease or chronic illness, or if you're a caregiver for someone who is, you're not alone. RareGuru provides a platform for connecting with other patients and caregivers, gaining knowledge about your condition, and sharing your personal story.
RareGuru is a free mobile app that connects caregivers, parents, and patients who are dealing with similar rare diseases or symptoms. It offers a means to regain control over your health and future by providing access to the necessary resources and a supportive community.
Connect with individuals who, like you, are knowledgeable and motivated patients, as well as caregivers. By using RareGuru, you'll be able to track your symptoms, share your diagnosis, gain a deeper understanding of your disease, and assist others in their healing process.
Obtain support from others who understand what you’re going through. Connect and show support for chronic diseases, depression, symptoms, and more with a network of patients and caregivers.
You have the freedom to choose how much or how little information you want to share about yourself and your condition. Regardless of whether you have a chronic illness, a recently diagnosed disease, or a mental disorder, the decision of what to share and with whom resides with you.
Don't allow your disease to isolate you from the world. Connect and learn together with RareGuru.
RareGuru Features:
Connect, Share & Network
- Create either a private or public profile indicating the level of information you're comfortable sharing.
- RareGuru connects you with other users who have either similar diagnoses or symptoms.
- You can filter your matches based on location, age, gender, and user type.
- Communication can be done through private or group chats.
- Social networking on RareGuru is safe and secure.
Symptom Tracker
- Monitor your symptoms and take notes to assess your condition.
- Export data trends for sharing with doctors and specialists.
Rare Disease and Chronic Illness Database
- RareGuru's disease database consists of up to 7,000 rare diseases and chronic conditions, as well as over 21,000 symptoms.
- The database is regularly updated based on information obtained from the United States Genetic and Rare Disease Information Center (GARD).
- A unicorn icon is assigned to diagnoses not yet included in the disease database to denote their rarity.
Global Disease Map
- Utilize the global disease map to identify regions where specific diseases are more or less common.
- Discover the number of RareGuru users who share your diagnosis in any given location.
Rare Charities
- RareGuru highlights organizations that serve the rare disease community.
- During onboarding, users have the option to select their preferred rare charities.
RareGuru facilitates connections and provides support for those facing rare diseases. Download the app today and join our community.
Visão geral
RareGuru: Rare Diseases é um software Freeware a categoria (2) desenvolvido pela RareGuru, LLC.
É a versão mais recente de RareGuru: Rare Diseases 2.0.0, lançado em 08/04/2024. Inicialmente foi adicionado ao nosso banco de dados em 14/02/2024.
RareGuru: Rare Diseases é executado nos seguintes sistemas operacionais: iOS.
Usuários de RareGuru: Rare Diseases deram-lhe uma classificação de 5 de 5 estrelas.
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